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Martin Center celebrates 50 years of service to sickle cell patients

INDIANAPOLIS RECORDER — The Centers for Disease Control and Prevention (CDC) estimates that about 100,000 Americans have sickle cell disease. The disease occurs in one out of every 365 Black or African American births, and about 1 in 13 Black or African American babies is born with sickle cell trait, meaning the baby inherited the gene from one parent and likely won’t have any of the symptoms of sickle cell disease.

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The Martin Center Sickle Cell Initiative, 3545 N. College Ave., sits in what used to be a duplex. The center, which provides support for people who have sickle cell disease, is celebrating its 50th anniversary this year. (Photo by: Tyler Fenwick)
The Martin Center Sickle Cell Initiative, 3545 N. College Ave., sits in what used to be a duplex. The center, which provides support for people who have sickle cell disease, is celebrating its 50th anniversary this year. (Photo by: Tyler Fenwick)

By Tyler Fenwick

Julie Daniels lucked out when her mother took her to the pediatrician when she all of the sudden couldn’t bear any weight as a 1-year-old, even after learning how to walk. The pediatrician was a hematologist and recognized the signs he saw. He tested Daniels, and sure enough, she was diagnosed with sickle cell disease.

Daniels has Hemoglobin SB+ (beta) thalassemia, to be exact. It’s one of the four main types of sickle cell disease. The disease affects hemoglobin, the protein in red blood cells that carries oxygen to different parts of the body. Symptoms can include anemia, repeated infections and chronic pain.

It’s the pain that has affected Daniels’ life the most. She stopped working in 2015 because the pain was so bad. She’s on disability now, but she said the pain seems to come more often. The worst days — when the pain becomes overpowering and she can’t do anything — can happen as often as three times a week.

Couple that with fatigue, and it’s like your body “just shuts down on you,” Daniels said, and a nap isn’t going to make it any better.

Growing up in Fort Wayne, said she felt “very alone.” She had a cousin with the same disease, but he lived in Maryland. Daniels, who went to Purdue University and got her master’s degree in Indianapolis, started going to the Martin Center Sickle Cell Initiative in 2010. She had never heard of what was then a 41-year-old organization. There wasn’t anything like it around the state.

This year, the Martin Center is celebrating its 50th anniversary. That’s 50 years of supporting a community that for so long has been ignored and stigmatized. There will be a celebration with dinner, music and a silent auction at 6:30 p.m. Sept. 20 at the Willows on Westfield. Tickets are $75 at themartincenter.org.

Go back to 1969, when Father Boniface Hardin and Dr. Raymond Pierce founded the center, and it’s clear why this organization was needed.

“You would find that there really wasn’t much information at all and hardly any interest in sickle cell disease,” said Gary Gibson, president and CEO of the Martin Center, “because it was a disease that seems to affect only Black people, and people of color didn’t matter. It didn’t get the attention that it should get.”

The Centers for Disease Control and Prevention (CDC) estimates that about 100,000 Americans have sickle cell disease. The disease occurs in one out of every 365 Black or African American births, and about 1 in 13 Black or African American babies is born with sickle cell trait, meaning the baby inherited the gene from one parent and likely won’t have any of the symptoms of sickle cell disease.

Daniels knew her husband didn’t have the gene, so they could only pass along the trait to their daughter. Daniels said they talk with her about the possibility of having a partner who also has the trait and potentially passing the disease to her child. When both parents have the trait, there’s a 25% chance their child will have the disease, according to the CDC.

This is part of what the Martin Center has been doing: educating people who have the disease and trait. The organization has programs that not only teach patients about the disease, but also provide services and support such as a food pantry, support groups and financial assistance.

Frank Lloyd, a Martin Center board member and retired physician, understands why it’s important for African Americans to have this kind of intimate meeting space to talk about a disease that many others know so little about.

During his time at IU Health Methodist Hospital, Lloyd saw sickle cell patients whose pain was discounted by other physicians. It’s a well-documented phenomenon in medicine, where white doctors have false beliefs about biological differences between their white and Black patients, leading them to think their Black patients don’t feel as much pain.

The Martin Center is a place where patients can drop that guard and be with others who are also dealing with an invisible disease that doesn’t get as much attention — or funding — as other conditions that are less common.

Gibson, whose wife died from complications with sickle cell disease in 1989, said the next step for the Martin Center hopefully involves expanding. He would like to get up to Gary and Fort Wayne, places that need these kinds of services but don’t have them to the same scale.

He saw what sickle cell disease did to his wife and sees what it’s doing to patients now every day.

“It’s not fair,” Gibson said. “Those who have it didn’t ask for it, and they didn’t do anything to cause it. To me, that’s just not fair.”

Contact staff writer Tyler Fenwick at 317-762-7853. Follow him on Twitter @Ty_Fenwick.

This article originally appeared in The Indianapolis Recorder.

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Headlines and Hotlines

Niele Anderson and Rodney Perry break down today’s hottest headlines on the BlackPressUSA Morning Show. Don’t miss the conversation behind the news!

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BlackPressUSA TV segment: Headlines and Hotlines discussing current events and important news topics.

BlackPressUSA Morning Show: Host Niele Anderson is joined by Rodney Perry for a closer look at the headlines demanding attention.

Watch BlackPressUSA Morning Show for the headlines, the context, and the conversation behind the news.

#BlackPressUSA #MorningShow #BlackNews #NieleAnderson

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Headlines and Hotlines 📱

Join Niele Anderson and Rodney Perry on the BlackPressUSA Morning Show as they break down today’s hottest headlines and the conversations behind them.

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BlackPressUSA Morning Show: Host Niele Anderson is joined by Rodney Perry for a closer look at the headlines demanding attention.

Watch BlackPressUSA Morning Show for the headlines, the context, and the conversation behind the news.

#BlackPressUSA #MorningShow #BlackNews #NieleAnderson

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Statement from the President of the National Association of Black Journalists on Press Ban

TEXAS METRO NEWS — The National Association of Black Journalists (NABJ) condemned President Donald Trump’s decision to deny access to MS NOW journalists and his threats against CNN and Politico due to unfavorable coverage. The NABJ stated that journalists hold power accountable for the American people, and government officials cannot grant or withhold access based on reporting they like or dislike.

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Statement from the President of the National Association of Black Journalists on Press Ban

NABJ condemns President Donald Trump’s decision to deny access to MS NOW journalists and his threat to exclude CNN and Politico because of coverage he dislikes. The role of journalists is to hold power accountable on behalf of the American people. Government officials cannot reward reporting they find favorable with access, or withhold access as punishment for journalists who have scrutinized or criticized them. This retaliation is a threat not only to the news organizations being targeted, but to every journalist working to report independently and without fear of government reprisal. The White House belongs to the American people, and they have a right to know what their government is doing. Journalists must be free to ask difficult questions and report the answers. A free and independent press is not a privilege granted at the discretion of any president. It is a cornerstone to a healthy and functioning democracy. The First Amendment can never be optional.

Based on reporting by Texas Metro News.



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America’s Reading Crisis Demands More Than Concern. It Demands Action.

JACKSON ADVOCATE — A national literacy crisis is emerging as reading achievement continues to decline across the United States. Nearly 40% of fourth graders read below the basic level, and roughly one-third of eighth graders are below basic, marking the highest share ever recorded.

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Photo: iStockphoto / NNPA.
Photo: iStockphoto / NNPA.

By Marc H. Morial

National Urban League President & CEO

New York City’s troubling decline in reading scores, despite one of the most ambitious literacy reform efforts in the nation, is a wakeup call for the entire nation.

Across the country, reading achievement continues to decline. Nearly 40 percent of fourth graders read below the basic level and roughly a third of eighth graders are reading below basic, the highest share ever recorded.

Taken together, these numbers reveal a national literacy crisis that threatens economic opportunity, educational equity, and our nation’s future competitiveness.

Reading is not merely another subject in school. Reading is the foundation upon which all learning rests. A child who struggles to read struggles to learn history, science, mathematics, and civics. A young person who cannot effectively read and analyze complex information faces barriers to college completion, workforce success, and informed participation in our democracy.

That is why the growing literacy crisis is fundamentally an opportunity crisis. Behind every percentage point is a child whose future opportunities hang in the balance. Persistent achievement gaps mean that Black and Latino students continue to bear a disproportionate share of the consequences when reading instruction falls short. If we are serious about economic mobility and educational justice, literacy must be at the center of the conversation.

For more than two decades, many schools embraced Balanced Literacy approaches that sought to cultivate a love of reading by putting books in students’ hands and encouraging independent reading. The approach was well-intentioned, but too often foundational skills instruction, particularly phonics and decoding, suffered.

The evidence is increasingly clear that explicit, systematic instruction helps more children become successful readers. States and school districts that are embracing these principles deserve credit for moving in the right direction. But millions of students are already in middle school, high school, and even college struggling to read complicated texts, analyze difficult arguments, and complete entire books.

What is our plan for them?

Too many students arrive in high school lacking the reading stamina necessary to engage deeply with literature, history, or complex informational texts. College professors increasingly describe students who struggle with lengthy assignments that previous generations navigated more comfortably.

To be clear, Balanced Literacy alone cannot explain these trends. Increased screen time, constant digital distractions, shortened attention spans, and the dominance of algorithm-driven content all influence students’ reading habits and learning experiences.

Yet recognizing these factors cannot become an excuse for inaction.

Instead, it should compel us to think more broadly about literacy.

The challenge before us is not simply helping children sound out words. It is helping them develop the capacity to wrestle with complex ideas, sustain attention, evaluate evidence, and build knowledge through reading. It is helping them become informed citizens and lifelong learners.

And that requires a comprehensive, systemic strategy.

We need high-quality literacy instruction beginning in early childhood settings and extending throughout elementary school. We need to strengthen early intervention so that struggling readers receive support before learning gaps become entrenched. We must carefully examine the quality and effectiveness of programs serving our youngest learners, including Head Start and other early childhood initiatives.

At the same time, we need a national commitment to literacy recovery for older students. Districts and states should be developing evidence-based strategies that help adolescents strengthen comprehension, vocabulary, knowledge-building, and engagement with complex texts. Students who fell behind during the pandemic and those who continue to struggle deserve intensive support, not lowered expectations.

We should also have serious conversations about the role of technology in children’s lives. Restricting unnecessary screen exposure, particularly in the early grades, should be part of a broader effort to rebuild reading habits and attention spans that support learning.

More concerning than the decline in reading scores is the absence of a clear, large-scale strategy to address the growing crisis. Every year that a struggling reader falls further behind increases the likelihood that they will face lifelong educational and economic disadvantages.

The recent reading results from New York City are a warning. The national NAEP results are an even louder one. Together, they tell us that incremental change is not enough.

We know more about how children learn to read than ever before. We know that literacy is the gateway to opportunity. What remains to be seen is whether we have the collective will to act with the urgency this moment demands.

Our children cannot afford for us to wait.

Based on reporting by Jackson Advocate.



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HBCU Leaders, Corporate Partners Convene in D.C. to Strengthen Support for Black Colleges’ Athletic Programs

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HBCU Leaders, Corporate Partners Convene in D.C. to Strengthen Support for Black Colleges' Athletic Programs

Commissioners from HBCU athletic conferences joined university presidents and corporate leaders in Washington on Tuesday, Sept. 15, for the Salute to HBCU Sports Leadership Reception — an invitation-only gathering aimed at deepening investment in historically Black colleges and universities.

Hosted at Gensler’s K Street office, the evening brought together conference commissioners, campus presidents, and executives from sports, media and design organizations under the theme “Building Partnerships. Celebrating Excellence. Advancing HBCUs.” Gensler highlighted its partnership with Paxton Baker on the event in a post on Instagram, showcasing the room full of HBCU presidents and conference leaders.

Five Conferences, One Room

Commissioners from four NCAA conferences and one NAIA conference were on hand, representing institutions that compete across Division I, Division II and the NAIA:

Anthony Holloman — Southern Intercollegiate Athletic Conference Charles McClelland — Southwestern Athletic Conference Jacqie McWilliams Parker — Central Intercollegiate Athletic Association Sonja Stills — Mid-Eastern Athletic Conference Kiki Baker Barnes — HBCU Athletic Conference

Their presence linked leadership from across the HBCU athletics landscape with campus administrators and organizations working in event management, design and media.

Presidents and Black Press Leadership in the Room

Among the university presidents in attendance were Prairie View A&M’s Tomikia P. LeGrande and Bowie State’s Aminta H. Breaux.

LeGrande’s appearance came just days after the Thurgood Marshall College Fund named her the recipient of its Educational Leadership Award, as announced by Prairie View A&M. She was honored at TMCF’s 39th Anniversary Gala on Sept. 12 in Washington. LeGrande has served as Prairie View A&M’s ninth president since June 2023.

Breaux, who has led Bowie State since July 2017, previously chaired the CIAA’s board of directors, according to her university biography.

Benjamin F. Chavis Jr., president and CEO of the National Newspaper Publishers Association, also attended — fitting, given the NNPA’s role as one of the reception’s presenting partners. Chavis and HBCU GO’s Lawrencia Moten conducted two 30-minute interview sessions with the conference commissioners, covering topics ranging from the NIL era to conference growth and the experience of leading HBCU athletics, according to HBCU GO President Curtis Symonds, who spoke with HBCU Legends about the sessions.

Corporate and Institutional Partners

Five organizations presented the reception together:

Gensler — the architecture and design firm that hosted the event Events DC — the District’s convention and sports authority USA Track & Field — the sport’s national governing body National Newspaper Publishers Association — representing Black newspaper publishers HBCU GO — the network dedicated to HBCU sports and culture

That mix of partners pointed to a range of possible collaborations ahead, from athletic facilities and event operations to sports programming and media coverage.

Building Beyond the Scoreboard

What stood out most was the mix of people in the room — conference commissioners setting strategy for their leagues, university presidents shaping institutional priorities, and corporate partners bringing resources and expertise from multiple industries.

With college athletics undergoing rapid change, particularly for HBCUs navigating the NIL era and shifting conference dynamics, the reception offered a venue for candid conversation and relationship-building. Its underlying purpose went beyond athletics: using sports as an entry point to broader opportunities in education, workforce development and economic growth for HBCUs.

Based on reporting by Columbus Times.



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Peter Magubane: a Camera Against Apartheid

THE POSITIVE COMMUNITY — Peter Magubane, a pioneering South African photographer, dedicated his life to documenting the realities of apartheid. Born in 1932, Magubane began his career at Drum magazine in 1954, initially as a driver before becoming a photographer.

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Peter Magubane: a Camera Against Apartheid

Peter Magubane was more than a photographer. He was a witness, storyteller, historian and courageous chronicler of one of the most turbulent periods in South African history. Born on January 18, 1932, in Vrededorp, Johannesburg, and raised in Sophiatown, Magubane discovered photography as a young boy after receiving a Kodak Brownie camera. That simple camera would eventually become his instrument for documenting the lives, struggles and determination of Black South Africans. He died on January 1, 2024, at the age of 91, leaving behind one of the most important photographic archives of South Africa’s apartheid era.

Magubane’s professional journey began at Drum magazine in 1954. He initially worked as a driver and messenger, but his ambition was to become a photographer. Under the mentorship of Drum’s legendary chief photographer Jürgen Schadeberg, Magubane developed his skills and began photographing major political and social events. His first significant assignment involved covering the 1955 African National Congress convention. From that point forward, photography became his way of documenting a country undergoing enormous change.

The South Africa that Magubane photographed was governed by apartheid, a system that legally enforced racial segregation and discrimination. For Black South Africans, everyday life was shaped by restrictions on where they could live, work and travel. Magubane did not limit himself to photographing politicians or famous leaders. He photographed ordinary people—children, workers, families and communities—giving the outside world a visual record of what apartheid meant in everyday life.

One of the defining moments of Magubane’s career came in 1960, when he photographed the aftermath of the Sharpeville Massacre. His photographs helped bring international attention to the violence surrounding resistance to apartheid. He also photographed the 1956 women’s anti-pass march, the Rivonia Trial involving Nelson Mandela and other activists, and numerous other events that became part of South Africa’s historical record.

Magubane paid an enormous personal price for his work. In 1969, he was arrested while photographing protesters outside Pretoria Central Prison. He was subsequently held in solitary confinement for 586 days. After his release, the apartheid government placed him under a banning order that severely restricted his ability to work and move freely. Yet the restrictions did not convince him to abandon photography. Instead, they demonstrated just how powerful the authorities believed his photographs could be.

In 1976, Magubane documented the Soweto Uprising, when thousands of Black students protested against the apartheid government’s education policies. His photographs captured young people confronting police violence and became some of the most internationally recognized images of the uprising. Despite the danger, Magubane continued photographing what was happening around him. His work transformed individual moments of protest into permanent historical evidence that could not easily be erased.

His creativity was matched by his determination to get the picture. Because authorities restricted photographers and attempted to prevent journalists from documenting certain events, Magubane sometimes concealed his camera in unusual places, including a hollowed-out Bible, bread and other objects. These methods allowed him to continue working when openly carrying a camera could attract police attention. His photographs demonstrated that documentary photography sometimes requires not only technical ability but extraordinary courage and resourcefulness.

After Nelson Mandela was released from prison in 1990, Magubane entered another important chapter of his career. He became Mandela’s official photographer and documented the transition toward democracy, including significant moments surrounding South Africa’s first democratic election and the Truth and Reconciliation Commission. The photographer who had spent decades documenting resistance now had the opportunity to photograph a country moving toward a new political era.

Magubane’s legacy extends far beyond the individual photographs he made. He published numerous books, exhibited internationally and received major honors, including an honorary Doctor of Literature from the University of Cape Town in 2010. His photographs remain part of the historical record because they show not only the brutality of apartheid but also the humanity, resilience and determination of the people who lived through it.

Peter Magubane ultimately demonstrated the extraordinary power of photography. He understood that a photograph can preserve a moment long after the people who witnessed it are gone. His camera recorded injustice, resistance, suffering, courage and eventually freedom. For photographers today, his life offers an enduring lesson: photography is not simply about making beautiful pictures—it can also be about seeing clearly, standing close to history and making sure that important stories are never forgotten. Magubane’s photographs gave South Africa a visual memory, and his life’s work reminds every photographer that sometimes the most important picture is the one that history needs someone brave enough to make.

Based on reporting by The Positive Community.



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